We were so excited to be a part of the National PKU Alliance “Lifting The Limits for PKU” event at Fairmont Copley Plaza. It was a powerful evening that focused on fundraising towards research for PKU.
PKU is a rare inherited metabolic disorder that is characterized by the inability to utilize the essential amino acid, phenylalanine (PHE). Amino acids, consumed from the food we eat, are necessary to thrive as the building blocks for body proteins. When left untreated, people with PKU who consume too much PHE are at risk for severe neurological complications, including IQ and memory loss, concentration problems, mood disorders, early developmental delays and intellectual disabilities. Despite ground breaking research that has led to the hope of new therapies and treatments for this disease, the NPKUA’s work is far from over until a cure is found. “Lifting The Limits for PKU” was a tremendous success that helps take NPKUA research one step closer to finding a cure.
The gala in Boston featured an exciting silent and live auction with Auctioneer Keith McLane and Emcee Scott Pelley, not to mention a special performance from Jordan Knight, lead singer of New Kids on the Block, who sang a rendition of Billy Joel’s “She’s Got a Way” for one lucky lady who held the highest winning bid for the chance to be serenaded by Jordan Knight.
Thanks to everyone who attended and supported such a great organization #LTLforPKU